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1 – 10 of 255Pamela Roach, John David Keady and Penny Bee
Standards of care and care pathways for younger people with dementia vary greatly, making clinical development and service planning challenging. Staff working in dementia services…
Abstract
Purpose
Standards of care and care pathways for younger people with dementia vary greatly, making clinical development and service planning challenging. Staff working in dementia services identify that they use biographical knowledge of families to influence clinical decision making. This information is not collected or implemented in a formal manner; highlighting an important knowledge-practice gap. The paper aims to discuss these issues.
Design/methodology/approach
The development of a family-centred assessment for use in dementia care has three core components: first, thematic development from qualitative interviews with younger people with dementia and their families; second, clinical input on a preliminary design of the tool; and third, feedback from an external panel of clinical and methodological experts and families living with young-onset dementia.
Findings
The 12-item Family Assessment in Dementia (Family-AiD) tool was developed and presented for clinical use. These 12 questions are answered with a simple Likert-type scale to determine areas of unmet need and identify where families may need additional clinical support. Also included is a series of open-ended questions and a biographical timeline designed to assist staff with the collection and use of biographical and family functioning information.
Originality/value
A dementia-specific clinical family assessment tool, which also collects background biographical data on family units may be a useful way to document information; inform clinical decision making; and address otherwise unmet needs. Family-AiD has potential to improve clinical care provision of people with dementia and their families. Evaluation of the feasibility and acceptability of its implementation in practice are now required.
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Damith Thushara Woods, Cathy Catroppa, Senem Eren, Celia Godfrey and Vicki A. Anderson
The purpose of this paper is to review and summarise a small but growing body of literature demonstrating that by embedding intervention within a family context offers the…
Abstract
Purpose
The purpose of this paper is to review and summarise a small but growing body of literature demonstrating that by embedding intervention within a family context offers the greatest promise of success in working with families caring for a child with traumatic brain injury (TBI).
Design/methodology/approach
The approach takes the form of a literature review.
Findings
The current family-centred evidence-based research indicates the potential benefits for the delivery of family focused interventions following childhood TBI.
Originality/value
The paper adds to the paediatric TBI literature as being of the few papers to incorporate a number of novel family-centred behavioural interventions into the one review paper.
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Annette Jinks, Sue English and Anne Coufopoulos
The purpose of this paper is to conduct an in‐depth quantitative and qualitative evaluation of a family‐based weight loss and healthy life style programme for clinically obese…
Abstract
Purpose
The purpose of this paper is to conduct an in‐depth quantitative and qualitative evaluation of a family‐based weight loss and healthy life style programme for clinically obese children in England.
Design/methodology/approach
The mixed method case study evaluation used included obtaining pre and post measurements of anthropometry and a range of attitude and behavioural attributes. The qualitative phase of the study involved in‐depth interviews and focus groups.
Findings
The programme is demanding and resource intensive and designed as an intervention for children needing most help with their weight. Participants included the families of five referred children (n=18 individuals) and the intervention team (n=7). All but one child had reduced BMI centiles at the end of the programme. There were also improvements to a number of self‐report aspects of healthy eating and levels of activity and quality of life, self‐esteem and levels of depression indicators. The qualitative evaluation generated a number of insightful data themes.
Research limitations/implications
Limitations include the case study design and small sample numbers. Also weight loss is an important indicator of any weight management programme's success however the short length of time programme was run is a barrier to seeing any substantive changes in any of the participating children's weights.
Practical implications
The evaluation conducted gives insights into the positive aspects of the programme and can inform development of similar programmes.
Originality/value
There are few examples of in‐depth and comprehensive quantitative and qualitative approaches used to evaluate this type of intervention.
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Keeley J. Pratt, Angela L. Lamson, Suzanne Lazorick, Carmel Parker White, David N. Collier, Mark B. White and Melvin S. Swanson
This review paper seeks to conceptualise childhood obesity through clinical, operational, and financial procedures. It informs multiple disciplines about: the trajectory of…
Abstract
Purpose
This review paper seeks to conceptualise childhood obesity through clinical, operational, and financial procedures. It informs multiple disciplines about: the trajectory of paediatric obesity and current recommendations; the trends in the clinical, administrative/policy and financial worlds of paediatric obesity; and discusses commonly misunderstood collaborative terms.
Design/methodology/approach
The paper is based on analysis of national and international policy documents and research papers in the field.
Findings
Paediatric obesity treatment teams, programmes, and providers could all benefit from a document that bridges the disciplines of medicine, other professions, and financial management. A family centred, multidisciplinary approach is necessary at all stages of obesity treatment care and the three‐world model discussed is helpful in achieving this. The clinical, operational, and financial aspects of the service need to be integrated in a way that reduces the barriers to accessing services.
Originality/value
The paper combines perspectives from different service sectors: clinical, operational, and financial. To facilitate interdisciplinary cooperation, it offers common definitions of terms that often have different meanings for those involved.
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Damith T. Woods, Cathy Catroppa, Celia Godfrey, Rebecca Giallo, Jan Matthews and Vicki A. Anderson
Children with acquired brain injury (ABI) are at significant risk of serious behavioural and social difficulties. The burgeoning growth of research documenting behavioural…
Abstract
Purpose
Children with acquired brain injury (ABI) are at significant risk of serious behavioural and social difficulties. The burgeoning growth of research documenting behavioural sequelae after paediatric ABI has not been met with a concomitant level of research aimed at treating the problem. The purpose of this paper is to investigate whether a manualised behavioural intervention support programme could reduce challenging behaviours in children with ABI and improve family-parental well-being and functioning.
Design/methodology/approach
A total of 61 parents (48 mothers and 13 fathers) of 48 children aged between three and 12 years with mild, moderate, or severe ABI received an ABI adapted “Signposts for Building Better Behaviour” programme (Hudson et al., 2001) in group-support (GS) or telephone-support (TS) format. Trained “Signposts” practitioners delivered the programme over a five-month period. The programme consisted of nine information booklets, a DVD, and workbook. All families completed pre-intervention and post-intervention evaluations.
Findings
On an average parents completed 7.92 out of a possible nine intervention sessions (range 7-9). Parents in both TS and GS formats reported significant reductions in challenging child behaviours irrespective of injury severity. They also reported significant reductions in dysfunctional parenting practices, stress and family burden.
Originality/value
Overall, the current research provides support for Signposts to be used with families of children with ABI in an attempt to ameliorate negative outcomes for family, parent, and child.
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Drawing on the theory of goal systems applied to family business this case study focuses on the interdependence between non-economic goals and family goals, in order to identify…
Abstract
Purpose
Drawing on the theory of goal systems applied to family business this case study focuses on the interdependence between non-economic goals and family goals, in order to identify if and how achieving non-economic goals generates dysfunctional behavioural patterns for family members in the long term.
Design/methodology/approach
This study used an inductive, 20-year longitudinal case-study based methodology.
Findings
This case study shows how the business family faces ethical/affective dimensions, struggling every day for a balance and often undermining the legitimisation and differentiation of its children. Findings show that the achievement of non-economic goals can occur to the detriment of family goals, such as by generating a dysfunctional system, specifically in business family adaptability.
Research limitations/implications
The principal limitation is that this single case study evidently does not allow for complete generalization of the findings.
Practical implications
This case study makes a contribution to alerting the family business system to the long-term risk they face in trying to simultaneously maintain both harmony/cohesion and ethics/responsibility. Practitioners and consultants are therefore called on to help family firm owners with adopting a strategic vision by considering possible long-term counterfinal (i.e. mutually incompatible) goals.
Social implications
SMEs are the most widespread type of firm in the world, and consequently dysfunctional behavioural patterns within business families represent a prominent socio-economical problem for policy makers and institutions.
Originality/value
This study shows that, in the long term, that which is perceived to be a desirable goal can transpire to be a dysfunctional pattern. In doing so, this research introduces a new point of view to the literature on goal systems in family business.
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Marco Bellucci, Carmela Nitti, Serena Franchi, Enrico Testi and Luca Bagnoli
This study aims to assess the effectiveness of social return on investment (SROI) as a measure of the social impact produced by non-profit organisations and social enterprises…
Abstract
Purpose
This study aims to assess the effectiveness of social return on investment (SROI) as a measure of the social impact produced by non-profit organisations and social enterprises that support family-centred care, an approach that focuses on the pivotal role of families in paediatric health care.
Design/methodology/approach
The study offers an analytical evaluation of the SROI created by the Italian branch of the Ronald McDonald House Charities and highlights (a) the participatory analysis of stakeholders and outcomes; (b) the measurement of inputs; (c) the definition of outputs and proxies for the measurement of outcomes; (d) the calculation of the SROI ratio; and (e) the results of a sensitivity analysis.
Findings
This study discusses the advantages and shortcomings of SROI analyses, the practical implications of this research on governance and management and the role of engagement in managing the expectations of stakeholders. The value of SROI measurements in shaping strategic and management decisions – with special emphasis on stakeholder relations – is also discussed.
Originality/value
Non-profit organisations and social enterprises often require tools that assess the outcomes of their activities. The present research can provide new guidance to SROI analysts, while drawing attention to the most suitable proxies and indicators for evaluating the SROI of organisations operating in the health care sector.
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The development of a paediatric out‐patient department of high quality is described. Key components include its philosophy and aims, a “children′s charter”, a family‐centred…
Abstract
The development of a paediatric out‐patient department of high quality is described. Key components include its philosophy and aims, a “children′s charter”, a family‐centred approach to care, a “continuum of care” and “uncongested flow‐through” of families. The role of the nurse as leader and practitioner is outlined.
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Chris Warren‐Adamson and Anita Lightburn
This article reflects on the significance of family centres in the UK as a mirror of new possibilities for child welfare in the years following the Children Act 1989. The Act…
Abstract
This article reflects on the significance of family centres in the UK as a mirror of new possibilities for child welfare in the years following the Children Act 1989. The Act empowered local authorities in England and Wales to provide family centres as part of ‘family support practice’. The article reveals a rich vein of family‐centred, centre‐based activity internationally and shows practice combining intervention from the sophisticated to the very informal. The authors focus on so‐called ‘integrated centres’ as complex systems of care with wide implications for practice and outcome evaluation in an ‘evidence‐based’ context.
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Larissa Veríssimo, Helen Rainey, Roberta Lindemann and Anne Hendry
This viewpoint piece will highlight the contribution of trained lay community health workers to the integrated workforce in rural, remote and island settings, drawing on…
Abstract
Purpose
This viewpoint piece will highlight the contribution of trained lay community health workers to the integrated workforce in rural, remote and island settings, drawing on experience from a system strengthening project involving community health agents (CHAs) in four municipalities in Litoral Norte, a remote coastal and island region in the state of São Paulo, Brazil.
Design/methodology/approach
This viewpoint reflects on experiential learning from a unique north–south collaboration that spanned the period of a global pandemic. It adds to the international literature on the value of community health workers in public health and chronic disease management and highlights their potential pivotal role as integrators at point of care.
Findings
CHAs took forward actions that touched the lives of thousands of vulnerable families with low income and complex needs in communities with high levels of social and health inequalities. They acted as a bridge between patients and families at home, primary healthcare professionals and wider community partners and services. Their valuable insight into the healthcare issues and social challenges experienced by the community informed and supported family centred practice and population health goals. The CHAs rapidly pivoted to became an essential public health workforce during the Covid-19 pandemic.
Practical implications
As the authors establish integrated care systems and embrace proactive care and population health, the conditions are favourable for introducing a similar role in the UK. For psychological safety and avoidance of burnout people in such new roles will require training, supervision and full integration within community teams.
Originality/value
This viewpoint reflects experiential learning from a unique north–south collaboration that spanned the period of a global pandemic. It adds to the international literature on the value of community health workers in public health and chronic disease management and highlights their potential pivotal role as integrators at point of care.
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